Céline Dion has been open about her struggles with stiff person syndrome, a rare neurological condition that has severely impacted her ability to sing. In a recent interview with Hoda Kotb, Dion described the sensation of singing with the disorder as feeling like someone is strangling her, pushing her larynx/pharynx and causing her voice to be stuck in a certain range due to muscle spasms. The disorder has caused stiffness in her torso and limbs, as well as intense muscle spasms that have affected her hands and feet. Dion first noticed symptoms while on tour in 2008, initially thinking it would be fine, but the condition quickly became a serious issue, affecting various parts of her body.
The muscle spasms from stiff person syndrome have been so severe for Dion that they have led to injuries, including broken ribs at one point. As a result, she was forced to cancel her Las Vegas residency in 2021 and her Courage World Tour. In order to manage the symptoms of the condition, Dion undergoes therapy five days a week, working on everything from her toes and knees to her voice. Despite her efforts, Dion is uncertain about her future in performing and singing, as she has been indecisive about returning to the stage for several years. She acknowledges that at this point, she cannot make any promises about her ability to perform again in the future.
Dion’s struggles with stiff person syndrome will be explored further in her upcoming documentary, “I Am: Celine Dion,” which will be released on Amazon Prime Video on June 25. The documentary will give viewers a glimpse into her life with the condition, offering insight into how she navigates the challenges it presents on a daily basis. Additionally, Dion’s full interview with Hoda will air on June 11 at 10 p.m. ET on NBC, where she discusses her health, her struggles with stiff person syndrome, and her uncertain future in the music industry. Despite the challenges she faces, Dion remains determined to share her story and raise awareness about this rare neurological condition.
Through her candid interviews and upcoming documentary, Dion is shedding light on the impact that stiff person syndrome has had on her life, her music career, and her overall well-being. Her openness about her struggles with the condition serves as a reminder of the importance of raising awareness about rare neurological disorders and the challenges they can present to individuals. Dion’s honesty and vulnerability in sharing her journey with stiff person syndrome are not only inspiring but also provide a platform for others facing similar struggles to feel seen and understood. As she continues to navigate her health challenges and uncertain future in the music industry, Dion’s resilience and determination shine through, showing that even in the face of adversity, she remains a powerhouse in the world of music and beyond.
